Welcome to the Arachnoid Cyst Support Group website

So ... you have found yourself on a mission to find out as much as you can about arachnoid cysts; what they are, the implications of having one and what the prognosis is for someone who has one.

Maybe you have an arachnoid cyst? Maybe you know someone who has been diagnosed with one? One thing you do know is that you have never heard of them.

You may be feeling frustrated and/or uncertain and confused about what lies ahead.

The Arachnoid Cyst Support Group does not have all the answers. However, we hope that by sharing our experiences and ‘stories’, your journey will be made a little easier and the process of gathering information and making decisions will be a productive one.

A medical diagnosis can be challenging and often life changing. Try to maintain a balanced perspective and do not allow the diagnosis to ‘define’ you.

We live in a ‘cyber-orientated’ society, with an immense amount of information posted on the internet. Be mindful of what you take on board. Be mindful of the difference between data and clinical findings and personal opinions and ‘stories’.

There is limited literature, data/information available on arachnoid cysts. This is not an uncommon phenomenon for rare disorders. However, it can be frustrating and can cause additional anxiety, fear, anger, helplessness, loneliness and a feeling of ‘isolation’ for the person who has been diagnosed. Remain positive and realistic.

Persevere until you receive the answers to your questions. It is your responsibility to determine what is right for you and your circumstances.

If you are feeling frustrated ... and looking at your CT scans make you wonder how you make it through the day ... the flipside is that the brain has an amazing capacity to compensate in adversity.

Listen to your body.
Go with your instincts.
Ask the hard questions.
Have open and frank dialogue with your doctor.
And above all, be kind to yourself.

We hope you find our website useful.

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